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CHD can't keep me down!

Lily Granatelli

Lily Granatelli

Hello, all my beautiful friends and family!

Guess what?!?!?! It's Heart Walk time again, and I'M BACK!!! Not sure who I'm talking about?! I'm talking about ME, silly! It's Lily, from Lily's Army! First, I want to thank so many of you who helped us raise so much money in 2018 for the Children's Heart Foundation! Your donations truly save lives! We just love you all so much!

I turned 5 years old this past November, and even though I’m learning how to spell and write, I still needed my Mom's help so that I could tell you a little bit about both my story and my mission...

Most of you know that I was born with a very special heart, and that I had life-saving open heart surgery when I was almost 18 months old, on May 1, 2015. I have so many doctors and nurses that I love so much, that have always taken, and continue to take, such amazing care of me...and I KNOW that they'll take the best care of me for the rest of my life.

Here's the thing that a lot of people don't know about people like me that were born with Congenital Heart Disease: even though my heart was repaired, it is still a very, very special heart, and always will be! Because I have such a beautiful, unique heart, it will always be well taken care of for the rest of my life by my heroes...the doctors and nurses who saved my life almost 4 years ago. When you're born with CHD like I was, your heart will always be special!

I have to tell you a secret...I think that the scars on my chest, especially my ZIPPER scar (that's what us members of the super-secret Zipper Club call means the scar that runs down the middle of my chest) are SO. COOL. My Daddy introduced me to Harry Potter when I turned 4, and the first thing I noticed was that Harry has a scar on his head that looks like a bolt of lightning! Harry's scar shows the world how strong, brave and SPECIAL he is, and that's the way that my scars make me feel! No matter what anyone might say, I know that I'm strong. I know that I'm brave. I also know that I am so, so loved, and that makes my heart really happy!

Did you know that there are SO MANY other kids out there JUST like me?! We're the 1 in 100. 1 in 100 means that 1 out of every 100 babies born are born with special hearts. That's a whole lot of special hearts, which makes CHD the NUMBER ONE birth defect. WOW, right?!

There isn't a cure for CHD, but I'm SO HOPEFUL that with your help and your donations, one day we will get there! I just know it...and so do my Mom and Dad! We'll be walking in the Atlanta Congenital Heart Walk on April 27th, and I'd love you to help me reach my fundraising goal of $10,000! That's a lot of money, right?! My Mom told me though that anything is possible, so I think I can do it...with your help, of course! No amount is too big, and no amount is too small.

Thank you for reading my e-mail, and I promise I'll run my special little heart out on the 27th! I love you all! Thank you, from the bottom of my very special little heart.

Love, Lily


raised of $10,000 goal

Recent Donations

1. JFJeanne M Fanning
2. JPJessica Pellegrino
3. SFSandy Ficken
4. ?Anonymous
5. BZBrandi Zuckerman
6. THTheresa Hurlburt
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