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Welcome to Lisa's Page - A heart mom's story

Lisa Mallgraf

Lisa Mallgraf

Thank you for visiting my page. Raising funds for CHD research is critically important and personally very meaningful to me. This is because my daughter, "Amazing Grace" was born with Hypolastic Left Heart Syndrome. Here is her story....

Grace was born on 6/12/08 along with her twin Abigail. The difference between Grace & Abby is Grace was born with Hypoplastic Left Heart Syndrome. She had her first open heart surgery, the Norwood on June 19, 2008. After a rough go, she had a Norwood revision on July 27, 2008. After the second surgery, she recovered beautifully and left the hospital on August 12, 2008. She had spent 8 1/2 weeks in the NICU.

On November 18, 2008 Grace went back into the Operating Room and had the Glenn procedure. This by far, was the "easiest" surgery for us. She recovered amazingly fast and came home six days later and was home just in time for her first Thanksgiving.

Over the first year of her life, Grace received many services, and thrived as an infant. Thankfully she met all of her milestones in a timely manor and was never too far behind her twin sister!

On May 10, 2011, Grace had her Fontan procedure. This was quite possibly the scariest day of our lives. She was on bypass for 5 1/2 hours and we had no idea what the outcome would be. Immediately out of the OR, Grace's cardiologist pointed out to us that she was now "pink". We were amazed at how obvious it was when looking at her little toes and fingers. No more "blue baby"! Grace had a rough road to recovery after the Fontan. She spent over a week in the PICU and scared us a few times. She was moved to the cardiac floor and spent another 2+ weeks there before having all of the tubes and lines removed and was allowed to go home.

Grace is now 10 1/2 years old and doing well. She is in the 5th grade and does great in school. She has made numerous friends, plays soccer, golfs, swims, and runs and plays like a "normal" child. It's hard to believe that all of the surgeries were so long ago, as the memories are still so vivid in this mommy's mind!

CHD babies are the strongest little fighters and awareness needs to be spread! They truly are little heroes! Please help us to fund CHD research by making a donation to my personal fundraising page. Together we can make a life-saving difference!

We hope you will consider joining us this year... The more the merrier!

Event Venue: Sunken Meadow State Park
Event Date: May 19, 2019
Event Address: Rte 25A and Sunken Meadow Parkway, Kings Park, NY 11754

The Day's Schedule*:
Venue Opens: 8:00 a.m.
Registration Opens: 8:00 a.m.
Pre-Event Activities Open: 8:00 a.m.
Announcements and Remarks: 8:30 a.m.
Walk Starts: 9:00 a.m.
Family Fun and Activities: 9:45 a.m. - 1:00 p.m.
Event Ends: 1:00 p.m.

Sincerely,
Lisa

Comments

$610
raised of $500 goal
 

Recent Donations

1. MWMarisa Wheeler
$500.00
2. CMCecilia Mallgraf
3. JMJohn T McWalters
Captain

Team Amazing Grace

$7,645
$3,000