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Welcome to Rachel's Page

Rachel Razzano

Rachel Razzano

Thank you for visiting my page. Raising funds for CHD research is critically important and personally very meaningful to me. Please help us to fund CHD research by making a donation to my personal fundraising page. Together we can make a life-saving difference! ❤️💙

Love,
The Razzanos

AUG
4

We found out about our son Luca’s heart defect diagnosis on July 19th, 2019 when I was 32 weeks pregnant. I received the call from the cardiologist, while I was at work, that our son had possible HLHS and a complete or severe interruption in the aortic arch and surgery in the first week of life would be necessary. This was a lot for us to take in and felt surreal. The next few months flew by as we tried our best to figure out exactly what these hearts defects were and which hospital would be the best choice to help us in our journey. We wanted to stay local, as our hometown is only 20 minutes from one of the bigger hospitals in our area. That was a huge advantage for us as we have another child, who wasn’t even two at the time, and also we’d have many family and friends to help us get through this stage in our life. However, we made the ultimate decision to go to Boston Children’s based off of recommendations from Drs in our area who thought they’d best serve our needs. So many emotions built up to the day that I delivered Luca. There were many tears, a lot of sleepless nights and a lot, a lot of research! You get sucked into it and just keep searching. You’re searching for hope, searching for answers and hoping that all these search results that you’ve found through google aren’t right! It’s such a hard thing to explain unless you’ve been there. I knew what CHD (congenital heart defect) was before Luca because my husband has a couple different ones himself but hasn’t needed surgery yet. Through the research we did as a family we found that the diagnosis’ we received were pretty severe and that HLHS, hypoplastic left heart syndrome, had a survival rate of 50% over the age of 18 (from what the drs told us). That’s such hard news to take when you’re trying to celebrate your new baby but in the back of your head you have those statistics that you can’t help but think about constantly. Eventually you just can’t take anymore and just give up on your searches as they tend to worsen things. You realize in that moment it’s all out of your control and all you can do is pray, so that’s what we did. On October 6th, Luca was born. He was brought over immediately to Children’s hospital, from Brigham Womens, to get him all ready to be monitored. The next morning they did his first echo outside of the womb. This echo showed a lot of promise! His left ventricle was small but not as small as they originally thought and also his aortic arch wasn’t interrupted, he had a mild coarctation. With this news a whole new set of emotions rushed over us and we couldn’t contain our tears of joy! After another echo they determined it would be in his best interest to fix the coarctation now while he was still healthy. On October 9th they went through his rib and mended his little heart. We were fortunate enough to have only had to stay for a week after surgery but in that week we learned and grew so much. Several of the parents that I met there had children who had HLHS, Luca’s original diagnosis, and they were there for months because they weren’t able to stabilize their little babies enough to bring them home until their next open heart surgery. When we were discharged, we just felt so blessed and so happy to be leaving and our little boy appeared to be doing awesome, however we also felt guilty, really guilty. Like how did we get so blessed to be leaving so soon and another kid has been here for months with no discharge date in sight. It didn’t seem fair! After seeing that and going through what we went through at Boston, it has put a spark in me to bring more awareness to CHD. Thankfully, our medical expenses weren’t anything crazy but a lot of these families have to find childcare for their other kids while in the hospital with their heart warrior or they have to take leave from work with no pay. You shouldn’t have to worry about how you’re going to pay your bills when you’re in the hospital trying to get your baby healthy. Help me raise more awareness about CHD and hopefully find out why this happens and find a cure for it! Please consider donating to this organization, anything really does help!❤️💙

AUG
3

He’s here!!! 🎉

Luca’s first echo

Kisses before Luca went in for surgery

Kisses before Luca went in for surgery

After surgery

A few hours post op

Taking it all in

❤️

Our last day on 8 South

Our last day on 8 South

No more nasal cannula!!! Yayyyy!!!

We’re going home!!! October 16, 2019

CHD Awareness week February 2019

Luca at his echo in July

Luca at his echo in July

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$1,612.99
raised of $500 goal
 

Recent Donations

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1. EBErica Baranski
$100.00
2. LBLynda Burden
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Team Hudson Valley Heart Moms

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